Anne’s Story

 

“We get to play with balls today!”  I heard as I walked across the front lawn of the YMCA for my first day of Women’s Transformation Bootcamp.  It was Anne who had exclaimed this.  During our year of boot camp, we learned a lot about each other.  There is nothing like nearly dying twice a week to bring a group of people together!  I learned Anne is extremely strong as she proudly used her black resistance bands.  She loves her teenage son, veteran husband, chocolate, wine, and liquor.  Anne has a huge heart; she genuinely cares for everyone in her life and will do anything she can to help or support them.  She has a knack for inappropriate comments, which kept us all laughing through the pain. 

The greatest trait I learned about Anne through boot camp though is that she never gives up.  She did every exercise for the entire set time or reps.  She may have needed to modify and go about it a different way, but she found a way to push through.  It is a trait that motivated me through boot camp and now inspires everyone she knows.  You see, a few months after boot camp ended, Anne began what could be called “the mother of all boot camps.” She was diagnosed with cervical leiomyosacroma (LMS), an extremely rare cancer. (Due to its location, her treatment plan follows the protocol for uterine LMS.)

Anne has been very open about her journey.  She wants to bring awareness to women’s cancers and educate others.  She has shared the good, the bad, the frustrating, and her hopes.  I asked Anne if I could document her journey and help her spread awareness for LMS.  Our goal is to keep it honest through pictures and words.  We want to show how life is the same but vastly different, how Anne and her family are coping, but mostly how incredibly strong Anne is in spirit and body as she is tested like never before.

To follow Anne’s progress, visit my weekly blog posts.  The first blog details the events leading up to her fourth surgery in less than three months, which is where I joined Anne on her journey.

LMS Facts:

Leiomyosacroma is a cancer of any involuntary muscles.

  • Leio= smooth
  • Myo= muscle
  • Sacroma= malignant tumor of any connective tissue

It is estimated that 6 out of 1,000,000 women in the US are diagnosed with uterine LMS annually.

Uterine LMS is almost always found by chance during surgery to remove fibroids.

To learn more about LMS and the fight Anne is up against, check out these websites.

LMSarcoma Direct Research

National LeioMyoSarcoma Foundation

Sarcoma Alliance

Sarcoma Foundation of America

Follow Anne’s journey with the most recent blog updates.

Anne’s Story: Every Day is a Gift

Review: Anne did not qualify for clinical trials and started the third line of FDA approved chemotherapy for leiomyosarcoma. March 2019 I took Anne out to lunch.  Moving around took great effort and focus.  At the restaurant, Anne barely touched her food and...

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Anne’s Story: Meet Fred

Review: Anne’ chemo treatment was no longer working and the side effect pleural effusion had become unmanageable resulting in a pleural drain being placed in her lung sac.  The doctors decided to give Anne a chemo break over the holidays to give her body a rest and to...

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Anne’s Story: Chemo Break & Decisions

Review: Anne has been dealing with the ongoing side effect of pleural effusion (fluid around her lungs).  After her second admission to the hospital, the doctors decided to give Anne a chemo break through the holidays.  Two admissions later, a more long-term solution...

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Sparkson Photography

Jennifer Jones of Sparkson Photography is a documentary style family photographer specializing in family, newborn, and school portraits. Serving Kitsap County, WA and surrounding area.

Contact me to book a session.